MISSION 2020 - Vision 2025 THALASSEMIA FREE INDIA
Prologue of the disease
Information about thalassemia disease

Thalassemia is a serious genetic blood disorder. There are two types of thalassemia

  1. Thalassemia Minor - Thalassemia is not a disease but a condition in hemoglobin. A person with thalassemia minor lives like a normal person. He does not know that he is thalassemia minor until he does a thalassemia minor test (HPLC).
  2. Thalassemia Major - This is a disease that is present in a child from birth. As both mother and father are minor, hemoglobin is produced incorrectly due to a genetic change in their body. Due to this, their body begins to experience blood deficiency within a few months. Therefore, they have to undergo frequent blood transfusions. .Due to frequent blood transfusions, the amount of iron in the brain, heart, kidney, liver and other organs in the body increases and that organ fails and the baby becomes short-lived.


  1. 3. Symptoms - Symptoms like being constantly sick, getting cold, feeling weak and depressed, lack of growth of body according to age, yellowing of organs, difficulty in breathing.
  2. 4. Cause of disease - If both mother and father are minor then there is 25% chance that the baby will be normal, 50% chance that the baby will be minor and only 25% chance that the baby will be thalassemia major.
  3. 5. Treatment - Bone Marrow Transplant is the only solution for this disease. For this, it is necessary to match bone marrow of sister / brother, mother and father, for this a family costs 70 to 80 thousand, otherwise they have to find an external donor, then to perform this operation in Mumbai, You have to go to Pune, Vellore, Bangalore, Delhi, Calcutta, Hyderabad.

LATEST PROJECTS

OUR SUCCESS STORIES

  • §Ó??We organized the first-ever World Thalassaemia Day at the Parbhani Collectorate on 8th May, 2016. Prior to that, the district administration was not directly participating in the anti-thalassaemia efforts.§Ó??

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  • §Ó??Thalassaemia patients require regular blood transfusions. We felt the need to arrange for regular blood donation camps, which serves the dual purpose of supplying good, fresh blood to the patients, and increasing social awareness.§Ó??

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  • §Ó??All the Accredited Social Health Assistant (ASHA), a workforce organized under the Ayushman Bharat Yojana, have been being trained in thalassaemia awareness since 10th June, 2016.§Ó??

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  • §Ó??We have also successfully followed up with the Directorate of Health Services, Maharashtra, and ensured a regular supply of medicines to thalassaemic patients since 2016.§Ó??

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  • §Ó??We have also posted coloured posters and banners in all public places, frequented by masses such as hotels, function halls, marriage halls etc. making the people aware of thalassaemia, its implications, need for early identification and the advisability to avoid the birth.§Ó??

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  • §Ó??We must have made ourselves noticeable by then, as thalassaemic Gujrat, noted us by appreciating our efforts on 28th May, 2017, in the National Thalassaemia Meet, 2017, at Ahmedabad, Gujarat.§Ó??

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OUR GALLERY